November 11, 2010

Week 2.... Terrible 2's!!

Ok. Let me give a quick rundown of week 2. I get bloodwork on Monday, and my "anti-rejection" medication level is way too high. This does happen after a transplant, I am still in the "try and figure it out stages". I return Tuesday to see if it had gotten any better. Well, on Tuesday they see that my Phosphorus is way too low. So what do I do? I go to the 3rd floor of the Lied building and get 5 hours of a Phosphorus Transfusion. Worst thing about that?? The 2 hicks I had sitting next to me. I mean H I C K S!!! So, I am sitting there and when I stand up, I notice my whole left side is wet. The nurse thinks I spilt my water, when I tell her to take a closer look and notice what color it is. "oh" she says... my incision leaked. Not a little, but a lot. I panic. She and the surgeon both said that I must have had a "puss bubble" under my skin and it just leaked. Again, normal after surgery, but odd for 2 weeks post transplant. So, I realize I am just a medical mystery!! I get home Tuesday and just relax and visit with the girls as they just returned from Miami. Wake up Wednesday and again go for bloodwork at UNMC. Again, I get a call a few hours later. Phosphorus went up from 1.1 to 1.5... WTF? that is all?? but whatever. Anti-rejection is still at 22... should be in single digits, again WTF? So here is where the fun begins. I go to take a shower and notice that my left leg is twice the size of my right. I panic. I call the nurse who says, if you notice any changes, please call back it may be a blood clot. Those that know me know that I notice any teeny tiny bit of change, I freak. SO, about 20 minutes later, ten minutes after 4 I call and the "on call" coordinator says to go to ER, again it may be a blood clot. So, Patti picks me up and takes me to the ER. We get called back a lot sooner then some of the other people waiting. Look at my leg, and there were no poker faces there, it was bad. So, they start an IV, get a vascular ultrasound, and one of my Kidney to check for a blood clot. Guess what?? I am a medical mystery. No fucking blood clot. Not sure why it is swollen. Not sure what to suggest. She would go ask the surgeon as he is upstairs doing an emergency Kidney Transplant, and the Fellow (Dr. V) just left on a plane to get a Liver and Small Bowel. HOW COOL?!!? So I go back to the doctor today at 11 and see if I am collecting fluid or what the F is really going on.

Hope everyone has a great day. BTW, Kidney is working. Levels for the Kidney are "outstanding"... I was told that this does happen after surgery but usually not 2 weeks out. So I am REALLY NOT worried. If this is the worst that happens to me, I can deal with ER trips and all that jazz. I mean I feel so much better then I did 17 days ago. But whose counting!!??!

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