Well, my oldest brother Kevin recommended that i "blog" and since i haven't gotten the Passport he suggested, i am doing this instead. If i had the chance to read into someone elses thoughts and feelings, i sure would be reading it nightly, so here i go.
First of all, i don't have the best grammer or spelling, so deal with it. I am not very creative, i just say what i feel, and some people laugh, others cringe.
As many of you reading this know, i am diabetic and have been since September 5, 1986 (y0u don't forget a day like that). Over the last twenty years i haven't followed many of the rules, and always lived as i wanted, which i won't ever regret. In October of 1992 I learned that i had another disease, "Nail Patella Syndrome" what this means is i have 2 diseases that suck badly. I mean really?? So the doctors knew that i would someday need a new kidney (although i JUST admitted this in February of 2010). When people tell you had badly things are going to suck, you seem to just ignore it. I did.
Let me bring you to current day. On February 22, 2010 I got sick. I thought it was a cold, but when i went to get a chest x-ray the doctor strongly suggested that i check in to Clarkson Hospital. When i got there they explained that the Kidney's had all but completely shut down, and fluid was building up on my lungs and in my chest. Hence the reason i was only able to walk about 15 feet before gasping for air. They told me it was time to begin dialysis. What the fuck?!?!? I was trying everything in my body to stop them, but i was weak and had just realized this was going to be the "new normal". As many of my friends know, i am stubborn and will do everything on my own. At this point, i knew i was done and had no more strength to fight. I told my family that i was putting up the white flag, and called "uncle".
So that day they inserted a chest port and started dialysis. I think that cost me a grand total of 20, 000. That was just day one! Dialysis sucked the fluid off my chest and off my body. My ankles made an appearance for the first time in about 3 months. I was able to bend over and my gut wasn't completely in the way. The nurse explained that dialysis actually takes off fluid. Again, what the fuck?!?!? I haven't been this fat all my life??! you just took off 10lbs of fluid??!?! Sign me up! I began to fall in love with this process... where's my big mac?!? well, that lasted all of 30 minutes. When you see the blood come out of your body, and go through a machine and then come back, it feels odd. Not literally of course, but i sit and watch and wonder what has happened to me. So... i do dialysis at the hospital for three days and lose about 20lbs. I think that is awesome, but i get to feeling weak and exhausted. I tell the nurse, and she says "thats normal". At that point i scream and say to her, "NOT FOR ME! MAKE ME FEEL BETTER". At that point, she inserted some fluid and thought they had "taken too much off" during dialysis.
So that started the "New Normal for Megan Sharpe". I mean i am ok for now with this, but i still feel good. i have my jobs, my energy, and my smartass attitude that i have had all my life. but what does suck, is seeing the people who don't feel well, and know that someday that will be me.
UGH.
Anyway... here is the latest, i am 4lbs from the goal weight for my Kidney/Pancreas Transplant. The Transplant Team will be meeting soon and at which point I hope to be placed on the Transplant List. But until that happens, I will keep writing crap about my adventure on here.
My amazing sister is planning a golf tournament for me in June of 2010. So hopefully that will eliminate a portion of my hospital bills. You can look up info on the tournament via facebook. anyone can sign up for the golf, or come to the dinner that evening. Of course, more information will follow.
To end my first random thought adventure, i would really really like to thank everyone for their thoughts and prayers. I am not one to be very appreciative, but i can feel all the love and well wishes!!
So here is to my new normal, and all the adventures that come with this!!!
M
No comments:
Post a Comment